|
CLICK HERE if you have trouble viewing this page.
k];Fyu; b];l;Nuh/gp mN]hrpNa~d; ,e;jpah
? Nehahsu;> ngw;NwhUf;F cstpay; G+u;t MjuT.
? Neha; njhlu;ghd tptuq;fs; njuptpj;jy;.
? Nehahsu;> kUj;Jtu;> ngw;Nwhu;> Muha;r;rpahsu; MfpNahu; xUq;fpizg;G.
? Neha; gw;wpa Muha;r;rp kw;Wk; rpfpr;ir Nkk;ghL.
? Njrpa mstpyhd tpopg;Gzu;T eltbf;if.
? muR kUj;Jt Jiwfs; njhlu;G> gupe;Jiufs;.
? rf[> ,ay;G tho;f;iff;F kPz;Lk; jpUk;gpl cjtp
,t;tpj mbg;gil Nehf;fq;fSld;.....
gfpu;e;J nfhs;Sk; kfpo;r;rp Fiwtjpy;iy> khwhfg; gd;klq;fhfpwJ!
ek;gpf;if rhu;e;j ,t;thrfq;fspd; ntspg;ghlhf 2000k; Mz;L njhlf;fj;jpy; k];Fyu; b];l;Nuh/gp mN]hrpNa~d; cUthdJ. etPd ,e;jpahtpy; jFe;j Neuj;jpy; jir rpijT Neha; gw;wpa tpsf;fk;> tpopg;Gzu;T kw;Wk; cjtpf; FOthf 2000 tJ Mz;L gpg;utup 5y; ,J Muk;gpf;fg; gl;lJ.
"jir rpijT Neha;" gw;wpa Muha;r;rp> Neha; fz;lwpjy;> kUj;Jt MNyhrid kw;Wk; cjtp - ,e; Nehf;fq;fSld; Muk;gkhd ,f; FO ey;y gy cs;sq;fspd; cjtpAld; ,yhg Nehf;fpd;wp rPupa gzpfs; Mw;wp tUfpwJ.
lhf;lu; jpU. Gunter Schuebraundt mtu;fspd; Nahridapd;gb lhf;lu; jpU. tp.tp];tehjd;> Paediatric Neurologist, KKCTH1 > lhf;lu; jpUkjp. fy;gdh nfsuprq;fu;> Geneticist , KKCTH > jpU. fzgjp> nry;tp. Ftpjh> KKCTH > jpU. mzpy; Fkhu;> Nuhl;lup fpsg; (njd; nrd;id) kw;Wk; njd;dfj;jpd; cd;dj jd;dhu;t ,jaq;fspd; Kaw;rpapy; ,e;j rq;fk; gupzkpj;jJ.
ngUkstpy; ,y;yhj NghjpYk; ,e;Neha;f;fhd kUj;Jt cjtp Njb tUNthu; vz;zpf;if njhlu;gbahf mjpfupj;J tUtijf; fUjp Jtq;fg; ngw;w ,e;j rq;fj;jpy; Nehahspfs;> ngw;Nwhu;fs;> kUj;Jtu;fs;> Muha;r;rpahsu;fs;> jd;dhu;t-cjTk; Nehf;F cilatu;fs; ,yhg Nehf;fpd;wp gzpGupe;J tUfpd;wdu;. ,J KKCTH kUj;Jtkidia mbj;jskhff; nfhz;L njhlq;fg; ngw;W jw;NghJ SMF2 kUj;Jtkidapy; ,aq;fp tUfpwJ. fle;j Mz;Lfs; MW vdpDk; vz;zw;w gy; NtW mDgtq;fisg; ngw;Wr; rpwe;Js;sJ.
gjpT nra;j Nehahspfs; kugZ> gNah nfkpf;fy; gupNrhjidfs; nra;ag; gl;L Nehapd; jd;ikiag; nghWj;J tifg; gLj;jg; gl;Ls;sdu;. Nehahsu;> ngw;NwhUf;F MjuT vd;W kl;Lky;yhJ vy;iyfs;> fyhrhuq;fs; fle;J mwpT> mDgtq;fisg; gfpu;e;J nfhs;Sk; ,r; rq;fk; ru;tNjr Global programme on Duchenne Muscular Dystrophy - CINRG3 vDk; fofj;jpduhy; Nju;e;njLf;fg; gl;Ls;sJ. NkYk; ,e; Neha;f;fhd rpfpr;ir Kiw> kUe;Jfs; Fwpj;J MuhAk; gy;NtW cau; njhopy; El;g kUe;Jt tpQ;Qhd epWtdq;fSld; ,ize;jpUf;fpwJ.
jpU. ghyfpU&~;zz;> jpU. jpUf;Fkud;> jpU. mNrhf; Fkhu; MfpNahu; kw;Wk; ,ju cWg;gpdu;fs; rq;fj;jpd; tsu;r;rpf;fhf mauhJ ghLgLfpd;wdu;. ,tu;fis ed;wpAld; epizT $wg; gLfpwJ. ,tu;jk; Foe;ijfs; jir rpijT Nehahy; ghjpf;fg; gl;ltu;fs; vd;gJ Fwpg;gplj; jf;fJ. gpugy ebfUk;> murpay;thjpAkhd jpU. neg;Nghypad; ,r; rq;fj;jpw;F nghUSjtp kw;Wk; kj;jpa muR kUe;jpay; JiwaplkpUe;J kUe;J ,wf;Fkjp iyn]d;]; ngw;Wj; je;jJ Fwpg;gplj;jf;fJ. mtUf;Fk; cjtp Nehf;Fs;s ,tupd; FLk;gj;jhUf;Fk; Mo;e;j ed;wpfs;.
,r; rq;fj;jpd; cd;dj Nehf;fq;fSf;F cjT Kfkhf kj;jpa muR ONGC epWtdk; ,e;j ,izag; gf;fq;fs; jq;fs; Kd; nfhzu cjtpfs; Gupe;Js;sJ. ,e; epWtdj;jhUf;Fk; ed;wpfs; cupj;jhFf.
,d;W tiu rq;f nray;ghLfspy; rpy
? kUj;Jtu;> Nehahsu;> ngw;Nwhu; fye;Jiuahly; $l;lq;fs;.
? rf;fu ehw;fhypfs; cjtp.
? Neha; jtpu;f;f ngw;Nwhu;> neUq;fpa cwtpdUf;fhd MNyhrid.
KKCTH1 Kanchi Kamakoti Child Trust Hospital..
SMF2 Sundaram Medical Foundation..
CINRG3 Coooperative International Neuromuscular Research Group
|
