These are words of belief, relied on by our Muscular Dystrophy Association India. Planted in early 2000, we have blossomed comfort for a large cohort of Muscular Dystrophy community. And of course we have diagnosis and researches done to ease the hold of the disease. With able support from more like minds, things would prove ever positive.

        Neither so early, nor late as well, the Muscular Dystrophy Association India is one of the very few of its kind in India. Since its first breath on the 5^th of February 2000, the association has itself programmed with the duty to help those afflicted by the disease – MUSCULAR DYSTROPHY.

          When the idea of such an association was kindled by Dr. Gunter Schuebraundt on his visit to India, it was Dr. V. Viswanathan, Paediatric Neurologist from KKCTH¹, Chennai, Dr. Kalpana Gowrishankar, Geneticist, KKCTH, Mr. Ganapathi and Ms. Kavitha, KKCTH,  Mr. V. R. Anil Kumar, Rotary Club (Madras South) and few other personalities with similar frequencies to venture into the thought and realizing what was just an Association all but just in mind.

          With the case statistics increasing every now and then, the growing importance on our organization have led us to where we are now. The support group consists of the Patients, Parents, Doctors, Scientists, Volunteers and all of those interested in alleviating the status quo of the situation and who can positively contribute to the affected.

          After six long years of experience, involvements and a shift of the Association from its initial base at KKTCH to SMF², Chennai, in the midway, we have managed to establish a large cohort of Patients, Parents, Volunteers and like minds from all over South India. All of the patients who have registered with us have been examined in detail and investigated on biochemical and genetic aspect and diagnostic label established

         Our efforts haven’t stopped with helping the parents and children.The biggest advantage would be meeting the challenges and sharing across culture and borders. We are actively linked with International bodies working to find a cure for the disease. We are one of the chosen centres for the Global programme on Duchenne Muscular Dystrophy called the CINRG³.

          We need to thank Mr.Balakrishnan, Mr.Thirukumaran, Mr.Ashok Kumar and other members of our MDA who have been working relentlessly for the welfare of the association. Moreso important is that they are the Parents of the affected children with Duchene Muscular Dystrophy. Also, Actor/Politician, Mr.Napolean has supported our MDA India strongly and helped us with personal financial contributions and also helped us procure Drug Import License from the Central agencies. We are clearly indebted to him and his family for all the support.

          And in our quest, ONGC, India came forward on our request to sponsor this very thing which you are witnessing on your Desktop. Yes, this website was sponsored by ONGC, India. We are grateful to them for the same.

Our basic objectives include,

• Psychological support to Patients and Parents
• Dissemination of information on the disease
• Promote interaction and communication amongst Doctors, Patients, Parents and Scientists
• Promote Research and Development for these ‘orphan’ disease
• Create a National task Force for Public awareness
• Interaction with Government bodies and recommendations for important healthcare reforms
• Rehabilitation measures

Our activities till day include,

• Getting together the doctors, patients, and parents
• Providing Wheel chairs to the needy
• Counseling sessions for the parents and close relatives

¹Kanchi Kamakoti Child Trust Hospital

²Sundaram Medical Foundation

³Cooperative International Neuromuscular Research Group

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