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Duchene Foundation Australia, is holding a muscular dystrophy conference in Australia on the 26th & 27th Feb' 2010. Read More
 
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School for MD Children

First of its kind in India. The school has five large class rooms made uniquely child friendly with paintings of cartoon characters on the walls. The school is barrier free with free access on wheel chairs from the gate to the class rooms.

There is enough space for a bus to come in to the school campus and drop the children and pick up the children from the school. The school has very carefully chosen “Matt finish” flooring tiles to avoid skidding for these children as they are very unsteady on their feet and can fall easily.

Wheelchair friendly entrance
Wheelchair friendly entry
A classroom in the school
A classroom in the school
School Inauguration
School Inauguration

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Exon Skipping Update - October 2009

This is the first update of my report on exon skipping, originally published on the 30th of April 2009. Exon skipping is the most advanced genetic technique for an effective therapy of Duchenne muscular dystrophy, It is one of my many reports which I, Günter Scheuerbrandt, a biochemist in Germany, am writing for you, the Duchenne boys and young men, their families and care givers, who wish to know how the research work of many scientists and clinicians is progressing. All my reports and this one too, are not scientific publications with many difficult words, because I have tried to write them in a way that will let you understand what is happening for you in the laboratories even if you have not studied modern biochemistry and genetics.

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Standards of care for children with DMD in India

This booklet is the first of its kind in India – to help families understand how to take care of the children and when and what to do for a child with DMD. This boooklet contains information about the disease and suggested guidelines from various experts in fields of neurology, cardiology, pulmonology, physiotherapy, diet and psychology as well as the feelings of families of children with DMD.

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